Tony and I came home this afternoon for a few hours. We needed to trade out some clothes and get some clothes for Gage to come home in, since we didn't take any to the hospital.
Today we have nursed twice and plan to nurse one more time tonight. Gage is a nursing champ! He has really figured it out! I called this morning and talked to the night nurse and she said he stayed satisfied after I nursed last night, but that the tube feedings overnight were not doing it for him. They decreased his feeds after shunt surgery and they boy is just hungry!
His head continues to look better and better. It is noticeably smaller again today and is down another 1/2 cm since yesterday.
The rehab doc came by today and looked at Gage. She had good things to say about his movement, but also said that it looked like his calfs were weak or not working. His feet flex up (dorsiflex) and turn in, which means his shin muscles are working, but are not being opposed by the muscles that point your toes (plantar flex). She showed us how to stretch his ankles so they didn't get contracted. She said that things could obviously change, but that given what she saw today, she thought he would probably walk with braces...something we are totally fine with.
We still have to have the urodynamics test, to see if his urinary system is working correctly and make sure there's no backflow. We've been told that just because he can pee doesn't mean that everything is working correctly and things could be backing up into his kidneys.
We will have an appointment with a urologist next Saturday at Children's. He's a guy that the Spina Bifida nurse just went on and on about how great he is. He was at Children's and moved to Chicago, but they have not replaced him yet, so he flies in on weekends and time off at his job there to see kids here. We also have an appointment with the pediatrician Wed. Sept. 19 in Greenbrier.
Sorry no pictures today. We just didn't take any!