Welcome to our little space on the net! This blog is just about our family life, and began as a way to keep family and friends updated on what was going on with my pregnancy with our first son, Gage. We've since added Evie to our family, and I continue to blog about family life, car seats, spina bifida, and anything else that catches my attention.

The Kids

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Friday, September 7, 2007

Briefly at home

Tony and I came home this afternoon for a few hours. We needed to trade out some clothes and get some clothes for Gage to come home in, since we didn't take any to the hospital.

Today we have nursed twice and plan to nurse one more time tonight. Gage is a nursing champ! He has really figured it out! I called this morning and talked to the night nurse and she said he stayed satisfied after I nursed last night, but that the tube feedings overnight were not doing it for him. They decreased his feeds after shunt surgery and they boy is just hungry!

His head continues to look better and better. It is noticeably smaller again today and is down another 1/2 cm since yesterday.

The rehab doc came by today and looked at Gage. She had good things to say about his movement, but also said that it looked like his calfs were weak or not working. His feet flex up (dorsiflex) and turn in, which means his shin muscles are working, but are not being opposed by the muscles that point your toes (plantar flex). She showed us how to stretch his ankles so they didn't get contracted. She said that things could obviously change, but that given what she saw today, she thought he would probably walk with braces...something we are totally fine with.

We still have to have the urodynamics test, to see if his urinary system is working correctly and make sure there's no backflow. We've been told that just because he can pee doesn't mean that everything is working correctly and things could be backing up into his kidneys.

We will have an appointment with a urologist next Saturday at Children's. He's a guy that the Spina Bifida nurse just went on and on about how great he is. He was at Children's and moved to Chicago, but they have not replaced him yet, so he flies in on weekends and time off at his job there to see kids here. We also have an appointment with the pediatrician Wed. Sept. 19 in Greenbrier.

Sorry no pictures today. We just didn't take any!

3 comments:

Ashley said...

It is so good to hear that everything is going well. I'm so glad nursing is working out for y'all. I bet it is a great time to bond with your precious little boy! Have a good weekend!

Kellie said...

Excellent on the nursing and the progress Gage is making!!

David Morrison said...

Cuzzin Dave and the Omaha Morrison's are "full on" in Cuzzin Gage's corner. We have some of the Cornhusker folk up here praying for him, and although I have my doubts as to whether the Almighty fully understands their accents, I'm pretty sure he gets their intent. This boy is just a great big blessing to us all.