Welcome to our little space on the net! This blog is just about our family life, and began as a way to keep family and friends updated on what was going on with my pregnancy with our first son, Gage. We've since added Evie to our family, and I continue to blog about family life, car seats, spina bifida, and anything else that catches my attention.
Tuesday, December 21, 2010
Headed for surgery #7
A month or so ago, Gage's therapist let us know that she was concerned about subtle changes she was noticing in his gait and function of his legs. As time has progressed, so have her concerns, and the problems have become obvious to us, too. The surgeon that operated on Gage last June has left AR Children's and we felt we needed to go to someone who could figure out Gage's non-textbook issues. Our PT, as well as others involved with Gage's care, highly suggested we see Dr. Boop, a neurosurgeon in Memphis. Dr. Boop used to practice at ACH and knows spina bifida kids really well. Gage had an MRI a couple of weeks ago, and we picked up his past films from ACH and brought them with us to Memphis.
Today was Gage's appointment. We love Dr. Boop and we think we will continue with him, even after this issue is resolved. After looking at the films, Dr. Boop confirmed that there is a fluid-filled cyst putting pressure on Gage's spinal cord and causing his symptoms. This is the same thing he had surgery for last summer. Dr. Boop wants to be sure we get to the source of it this time, and thinks his shunt not working the way it should is contributing to the formation of these cysts.
The good news is that shunt surgery is a fairly simple, very common procedure. If the shunt is indeed malfunctioning, they will fix or replace it and we can come home the next day. If it's not the shunt, he will go ahead and do the surgery on the cyst itself, which will be more involved, and require 4-5 days in the hospital. If it is the shunt, and the cyst doesn't go away after it is fixed, then he will have a second surgery to deal with the cyst later.
Surgery isn't scheduled yet, but it should be January 11 or 17th at LeBonheur Children's Hospital in Memphis. My mom and step-dad still live in the Memphis area, so we will have a comfy place to stay and child care for Evie while we're there. We would appreciate your prayers for Gage and for us as we go forward. We are really hoping a simple shunt revision will take care of it and he won't have to have a more invasive surgery.